There is a good case for the IndiGen project to be upgraded into a “national genome mission", which supplements the Government’s investments with the energies of the private sector in the field of bio-technology. Explain (200 Words)
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IAS Parliament 5 years
KEY POINTS
· Recent findings in our genomic history, and the sharply declining costs of genetic testing and analysis, allow us to use these techniques to transform the way public health.
The government launched the IndiGen project, under which the full genomes of over 1,000 individuals are sequenced, and the data handed over to the individuals on a smart card.
This helps in two ways -
1. Anonymized genomic data can be used to identify genetic disorders and health risks of the communities the individuals are a part of.
2. The individuals concerned can use their genomic data to assist in diagnoses and medical treatments.
· While the IndiGen project is a good sign that the government has recognized the promise of precision medicine, it needs to be on an altogether larger scale if India is to be a major player in the precision medicine race.
· The most well-known success story of using genetic testing for reducing the disease burden is that of the ultra-orthodox Jewish community.
· Endogamy over centuries increased the prevalence of genetic diseases such as Tay Sachs, until Dor Yeshorim, a community organization, offered premarital genetic screening, helping people make informed decisions while choosing marriage partners and conceiving children.
· Adapting the idea to India requires building the risk profiles of thousands of genomic populations in our country.
· For instance, individuals should be allowed to contribute their genome information to the national platform through gatekeeper institutions that can anonymize, validate and annotate the data.
· State governments could add genomes of populations that they think are vulnerable. The more genomes there are on the platform, the more useful it is for everyone.
· If the Indian government creates a national genomic platform now, it would serve as inclusive health infrastructure and enable future generations to lead much healthier lives, without having to suffer debilitating financial burdens.
Chinna 5 years
Kindly review...thank you...
IAS Parliament 5 years
Good attempt. Keep Writing.
DHARU 5 years
Kindly review!!
IAS Parliament 5 years
Try to include the example of thalassemia. Keep Writing.
hema 5 years
Kindly review thank you
IAS Parliament 5 years
Good attempt. Keep Writing.
Shivangi 5 years
Please review. Thank you.
IAS Parliament 5 years
Good answer. Keep Writing.
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